As the mother of a child with Down syndrome, I cannot help but be thrilled when I read articles like Abigail Braithwaite's heartfelt essay about life with her daughter with Down syndrome
in yesterday's Washington Post. Her experiences with her
nine-month-old daughter Adara seem to mirror my own with my son at that
age in so many ways, and her frankness about her life with this tiny,
charming girl is refreshing. In order to truly educate people on
what it's like raising a child with special needs, it's important to
tell the whole story: the tears of frustration over things you cannot
control, the myriad ways you have to develop of doing things
differently just to help your child survive, the grief for the child
you thought you were going to have, and finally the acceptance and
realization of just who it is that's come to live with you and give to
you their extraordinary gifts.
Abigail's essay will likely help bring about new perspectives to people about what it's like to raise or be a person with Down syndrome. For her, it's summed up this way: "I have long said I am one of the luckiest people I know. This belief
has been shaken a couple of times in the past months, but I will stand
by those words today. Life is a wild journey; our job is to make the
most of it."
I'll
add to it: I cannot imagine my life without my son Eric, now that
he is here. My life and my perspective about so very many things
have changed immensely because of him, and I can't wait to see him
continue to bring his gifts to me, my family, and to everyone he meets.