Strollerderby

Bad Science: How The Autism Vaccine Scare Snowballed

Posted by Kate Tuttle

Jenny McCarthy as an activist, "Green Vaccines," death threats against pro-vaccine doctors, deadly measles outbreaks: all sprang from one source, a flawed medical study with a tiny sample size, a lead author willing to fudge the facts, and a story the media found too fascinating to fully examine. 

Writing in this week's Newsweek magazine, Sharon Begley lays out the timeline of what would become one of the biggest medical fairy tales of the past decade -- a narrative of corrupt pharamaceutical companies, poisoned children, and devoted parents. Too bad it wasn't, you know, true. 

As is now clear, the study published in the Lancet medical journal back in 1998 linking the MMR vaccine to autism (via intestinal problems) was just plain bad science. The study looked at only twelve children, for one thing. Worse yet, the lead doctor, Andrew Wakefield, fudged the facts. A decade later, ten of the twelve co-authors have disavowed the research they published, but as Begley's story made clear, at the time the media and public found Wakefield and his findings not only trustworthy, but revolutionary. And he wasn't alone; in 2000 U.S. Representative Dan Burton chaired a congressional hearing to look into the connection, and TV's 60 Minutes gave it the old expose treatment. It wasn't hard to paint parents as heroes (because so frequently they are, even when their facts are wrong), nor to deride the drug companies as villains (because, again, they often are). A story so delicious has a tendency to rob the media of its hallowed skepticism -- how else to explain the major coverage of a study of 12 kids, when subsequent studies (such as one at Boston University that looked at two million children) showed zero relationship between the MMR and autism. 

The story rode a wave of parental anxiety and media hype so big that it caused actual changes in behavior around vaccination -- and here's where, I think, Wakefield and his ilk bear some major culpability.  As vaccination rates went down and outbreaks broke out, children died of easily preventable diseases. And despite the frequent exhortation from anti-vaccine crusaders to "follow the money" in looking at relationships between doctors and pharmaceutical companies, I'd love to see more digging into Wakefield's financial stake in the autism industry (he was officially sanctioned for misconduct in having hidden the financial support he had received from parents of children with autism before undertaking the 1998 study, and now makes his living running a center that claims to cure autism).

The recent ruling by a special court that declared no connection between autism and vaccines has settled the legal question, for now. As for what happens in the court of public opinion, it's clear that's a far more complicated matter. The anguish felt by parens of autistic kids is real, as is the desire of every parent to protect her child. Let's hope that getting past the vaccine witch-hunt will free up more energy toward finding causes, cures and treatments for peope with autism. 

 

Related:

Resercher Fabricated Autism Link in Vaccine

Florida Dad Pushing to Ban All Thimerosal in Vaccines

More By This Author:

North Dakota Passes Law Establishing "Personhood" at Conception

Kittens Have Their Say (Aided by Nutty Six-Year-Old)

Twenty-Year-Old Kidnapping Solved

Little Girl with Bowel Disease Kept Alive on Donated Breastmilk

 


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Comments

 

Mila said:

I am currently reading Autism's False Prophets. It is heartbreaking to realize how much of Wakefield's research was financially motivated. If my child was Autistic I would want something to blame as well. I just hope that now money can be spent toward finding the REAL cause....

February 23, 2009 11:57 AM
 

Bean's Mom said:

The bad science in Wakefield's research has been known for a long time and is something I have been trying to inform other anxious parents about for years.  A major obstacle is the lack of understanding most Americans have of basic scientific methodology.  Even very smart parents who received excellent grades from acclaimed four-year colleges lack basic understanding in statistics and scientific research and fall prey to the emotional claims of people like Jenny McCarthy.  I mean she was revered in Oprah, for heaven's sake.

February 23, 2009 12:36 PM
 

Knitty said:

If you talk to parents of autistic children you will hear the same story again and again and again: my child was perfectly normal before the MMR shot, and afterwards was never the same again.  Are they all crazy?  Delusional?  After a big chunk of money from the court?  My pediatrician tells me that it's simply a coincidence, that the onset of ASD usually occurs around the time the MMR is given, but I'm not convinced.  The collective weight of their stories is difficult to ignore.

(I should note that was NOT the case with my daughter; the onset of her symptoms had nothing to do with vaccinations.  I'm not an anti-vac crusader by any means, but it troubles me to see the experiences of the people with the most at stake being ignored or worse, ridiculed.)

February 23, 2009 12:39 PM
 

Sheri said:

I'm with Knitty on this one.  None of my kids ended up losing speech or whatever.  The middle child didn't even exhibit any autistic traits until he reached kindergarten.  

I believe there are several causes for autism.  And we just have to find out what they are.  No science to back me up, but that's just my opinion.

As for Jenny....she does not speak for all families who have children on the spectrum.  And while I admire her love and tenacity in finding treatments that work for her son, I do not share many if any of her beliefs.

February 23, 2009 12:49 PM
 

elendy said:

Glad this is being addressed here. Slate actually did an excellent article a few years ago on why the autism-vaccine myth will not die down:

www.slate.com/.../2169459

Sorry I don't know how to make this a real link, but it's definitely worth checking out.

February 23, 2009 12:50 PM
 

Bean's Mom said:

Knitty:  No one is saying that those parents are crazy or delusional, just that they are susceptible to making  illusory correlations or comfirmation biases, which are very common human errors.  This is one major reason why people undertake double blind investigations--to gather knowledge that is free from interpretation biases.  Those parents who expressed concern about their children developing autism from vacccinations were taken seriously.  This is why there has been so much scientific research in the area.  As much as it might feel invalidating to those parents who believe otherwise, scientific research has failed to find any relationship between autism and vaccinations.

February 23, 2009 1:09 PM
 

Dawn said:

I love this article - thank you to Babble for sharing both sides of this issue so plainly.

February 23, 2009 2:47 PM
 

diera said:

Knitty,

Another big factor in addition to what Bean's Mom mentions is that people often misremember events.  This is one of the reasons that the Cedillos lost their case recently; the medical records contradicted their version of events, which was that their daughter was perfectly normal until she received her vaccines.  There have also been studies (adc.bmj.com/.../493) showing that parents were more likely to recall their child's autism as having been caused by the MMR after Wakefield's false results were released.

Which I guess technically I'd call "delusional", but only in the sense that we're all delusional.  Memories are not static, they are easily altered by subsequent events.

February 23, 2009 3:00 PM
 

Dawn said:

My infant and I were injured by vaccines in 2007.  I have 3 other victims in my family I would later learn.  Apparently, the answer often DOES lie in our genes.  Genetic predisposition to vaccine injury is REAL and it is caused by TOXIC CHEMICALS.  The damage to their DNA leaves them highly susceptible to injury from toxic chemicals and man-made viruses and this damage is INHERITED.  So, doctors stop turning a blind eye to all of this and either stand with us victims or be prepared to fight.

February 23, 2009 11:14 PM
 

shawmutt said:

Dawn said:  "Genetic predisposition to vaccine injury is REAL and it is caused by TOXIC CHEMICALS."

OK, Ms. CAPSALOT, which toxic chemicals cause vaccine injury, and where are the clinical trials to back this claim up.

February 24, 2009 3:32 AM
 

Chun Wong said:

There's a report about Dr Andrew Wakefield filing a formal complaint about the Sunday Times reporter on The Huffinton Post

www.huffingtonpost.com/.../uk-autism-doctor-launches_b_174711.html

At this time, I do not think that we can definitively say that vaccines cause or don't cause autism, there just hasn't been enough research, and, as other people have said, it could be that some children are genetically predisposed to reacting to vaccines.

The Huffington Post have a report about the Vaccine Court paying compensation to an autistic boy's family because they were able to prove that his autism was caused by brain inflammation which, in turn, was caused by the MMR vaccine. Read the full report at:

www.huffingtonpost.com/.../vaccine-court-autism-deba_b_169673.html

Perhaps Obama prioritizing autism will lead to more research into the causes of autism. I hope so.

March 18, 2009 12:42 PM

About Kate Tuttle

I'm raising a toddler and a teenager in a leafy suburb just outside Boston. In between having kids I've been an editor and writer, most recently with the African American National Biography and the late great Africana.com.

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